Thursday 3rd December 2015
Together with CLIC Sargent, commissioned by NHS England, we have created a digital leaflet for young people, NHS Cancer Services for Teenagers and Young Adults, to explain the standards of care they can expect when undergoing treatment for cancer. The leaflet also offers information on making choices about their care.
The leaflet summarises the Teenage and Young Adult Oncology Service Specification and explains the different needs of their age group compared to older adults or children – including how age can affect the types of cancer they are likely to have, the treatment they need and how well the treatment works.
It highlights the emotional impact a cancer diagnosis can have on young people, their family, friends, relationships, education and life and offers advice on what patients should do if they feel the care they're getting is not getting good enough.
The leaflet was reviewed by 18 young people aged 16 - 24 and was also approved by a specialist panel of teenage and young adult cancer experts.
Laura Clark, Teenage Cancer Trust Head of Quality, said:
We are very proud to have worked in partnership with young people, NHS England and CLIC Sargent to design this important resource. We're telling young people about the standard of care they should expect and empowering them to do something about it if they don't receive it. This will make a difference to many young people's cancer experience.
Dara de Burca, Director of Services at CLIC Sargent, said: "A cancer diagnosis is devastating at any time, but for a young person going through physical, emotional and social changes, it can be overwhelming. It is important that anyone diagnosed is as well informed as possible about both their treatment and the levels of support and care that they can expect.
"CLIC Sargent is very happy to have worked on this project with Teenage Cancer Trust and NHS England, helping to ensure that these young people and their families can cope with cancer and get the most out of life."