Friday 27th April 2018

Giving evidence to the panel was Steve Brine MP, Minister of State for Health with responsibility for cancer, Professor Chris Harrison, National Clinical Director for Cancer, NHS England and Dr Rachael Hough, Chair, Clincial Reference Group on children and young adult cancer services. They were asked powerful questions on what mental health support there is for children and young people with cancer, how the Government will address the financial impact of managing a diagnosis, and how progress is being made on patient experience for children and young people with cancer. More detail on the questions and answers can be found here.

Katie, 24 from Hull, was diagnosed with Hodgkin’s lymphoma in 2014. She was treated on the Teenage Cancer Trust unit at Castle Hill Hospital in Hull.

“I think today was really positive, things were taken on board and we were listened to, so let’s hope they become real changes. The biggest changes I’d like to see is progress in early diagnoses in young people, and improvement around first treatment support.”

Recent developments in cancer care have recognised that young people with cancer have unique needs, but progress is still needed in cancer services for young people to improve diagnosis, access to age-specific care and post-treatment support for this patient group.

Ben Sundell, Policy and Public Affairs Manager at Teenage Cancer Trust said: ‘The first scrutiny session of the inquiry has enabled the group to engage with and challenge some of the key decision makers across the board working in cancer. We are looking forward to drawing on this evidence and publishing our recommendations for how patient experience for young people with cancer can be improved’

As experts in children and young people with cancer, Teenage Cancer Trust and CLIC Sargent have teamed up to provide administrative support as the Secretariat for this pioneering Group in parliament. The charities are calling on MPs, children, young people and families to get involved, share their ideas and experiences to support the Group’s mission and join the conversation by using #YoungCancerVoices.