Thursday 6th June 2019

What's going on? 

At the start of this year, NHS England published a Long Term Plan, which outlined its priorities for the next ten years and set out a number of commitments to improve the outcomes and experiences of children, teenagers and young adults with cancer.

NHS England have now announced that they want to hear your views on their plans to update the 'specifications' for how Children, Teenage and Young Adult's (TYA) Cancer Services are delivered in England. This will mean some changes to how cancer services work and will help to deliver some of the commitments in the Long Term Plan. 

Why is this important to you? 

NHS England have come up with a set of ideas about how their proposed updates and improvements should look, and they want to hear what you think before they finalise them. 

A public consultation is an opportunity to check whether proposals are right and supported, to check the public understand their impact, and to identify any alternative ideas before final decisions are made.

How can you help?

The consultation period is now open and runs until 4 August. If you're a young person who has or has had cancer, a family member, or a healthcare professional, Teenage Cancer Trust and NHS England want to hear from you. There are many ways that you can get involved and give your views to this public consultation:

1) Help us represent you

Teenage Cancer Trust will be writing a response to the consultation, drawing together various sources of evidence and views from young people, healthcare professionals and frontline staff. We'd love to hear from you. 

There are two ways you can do this. If you would like to submit more detailed comments to us so that we can use them to build our response, please fill out this form with your opinions. Please submit your feedback by 21 June

Alternatively, over the coming weeks we'll be using our social media accounts to highlight some of the key areas that are being reviewed and updated. Follow us on Facebook, Instagram and Twitter, where you will be able to comment on each of these posts.

2) Tell NHS England what you think

In addition to helping us form our response, you can respond directly to NHS England’s consultation yourself by:

3) Join a webinar

NHS England are holding a number of webinars as part of the consultation period. You're invited to take part in them to hear an outline of the changes and share your views. You can access the webinars by clicking the links in the dates below: 

  • Wednesday 3 July, 4-5pm on teenage and young adult cancer for healthcare professionals, professional organisations and charities
  • Thursday 4 July, 4-5pm on teenage and young adult cancer for patients
  • Thursday 4 July, 5:15-6:15pm on children's, teenage and young adult cancer for parents and guardians
  • Wednesday 31st July, 9:30-10:30am on teenage and young adult cancer for healthcare professionals, professional organisations and charities

If you have any questions about the public consultation, or would like to speak in more detail to someone at Teenage Cancer Trust, please email our Policy team.