Monday 1st July 2019

Welcome back to the Teenage Cancer Trust Policy and Public Affairs blog space! After an extended break from writing, we're back to update you on all things policy and public affairs at Teenage Cancer Trust. 

Since our last update, our team has changed a little bit and I'm really excited to introduce you to us all. I'm Ellen, the Policy and Public Affairs Executive and I work alongside Ben (Policy and Public Affairs Manager), Liz (Policy and Research Officer), and Sasha (Deputy Director of Policy and Influencing). 

Ben and Ellen

June was a big month for the team with the launch of the long-awaited public consultation service specifications on cancer services for teenagers and young adults (TYA). These service specifications are NHS documents that describe what cancer care should look like. They are important because the proposed changes are about trying to improve the care that young people with cancer receive in the NHS. Take a look at out our video with Sheldon, a young person supported by Teenage Cancer Trust, and Dr Rachael Hough, to find out more: 

The proposed key changes being made to TYA cancer care are: 

  • ensuring networks of hospitals work better together for patients so young people can get care closer to home if possible and safe to do so
  • doing more research to make treatments better in the future, which also means patients will have better access to clinical trials
  • changing what happens once treatment finishes, including access to psychological support

Our team will be writing a response to the consultation and we'll be using your views and opinions to do this! If you want to know more about what's happening and how to get involved, head to our Service Specs page.