Our information team

Our information team is made up of experts in clinical services and information production, working alongside young people and healthcare professionals who review and feedback on all our information to make sure it’s age-appropriate, easy to understand and accessible.

You are viewing: Our expert reviewers

Producing our cancer information is a team effort. It’s really important to us not only that our information is accurate, but that it’s presented in a way young people understand and trust. There are key members of our team who ensure all our information is right and up-to-date:

  • Rosie Vare, Clinical Information Lead, responsible for all clinical information (existing and new)
  • Louise Soanes, Chief Nurse, provides clinical oversight

They work closely with others in the Teenage Cancer Trust Services department and Digital team to present the information in an easy-to-navigate way.
 

Our expert reviewers 

We’d like to give a special thanks to the team of expert reviewers who helped develop our original information content for Teenage Cancer Trust: 

  • Dr Rachel Hough, Consultant Haematologist and Clinical Lead for Young People’s Cancer Service, UCLH
  • Dr Martin McCabe, Senior Lecturer & Honorary Consultant Paediatric Oncologist, Young Oncology Unit, University of Manchester / The Christie
  • Louise Soanes, Chief Nurse at Teenage Cancer Trust
  • Wendy King, Consultant Nurse Teenagers and Young Adults with Cancer, UCLH
  • Clare Jacobson, Clinical Psychologist, Teenage and Young Adult (TYA) Cancer Service and Paediatric Auditory Implant Service, Guy’s Hospital

Information you can trust

PIF tick, trusted information creator logo

Like many charities and organisations we follow the Patient Information Forum (PIF) TICK process. This means we have agreed to follow a strict process when we create our clinical information to make sure people know it can be trusted. 

We follow the 10 criteria for trustworthy health information, as laid out by PIF:

  1. Information is created using a consistent and documented process.
  2. Staff are trained and supported to produce high-quality information.
  3. Information meets an identified consumer need.
  4. Information is based on reliable, up-to-date evidence.
  5. Patients are involved in the development of health information.
  6. Information is written in plain English.
  7. Print and digital information is easy to use and navigate.
  8. Users can give feedback on information.
  9. Information is promoted to make sure it reaches those who need it.
  10. The impact of information is measured.

You can read more about how we produce our cancer information.

User testing

Our information is here to help young people with cancer when they need it, and in the format that they want it, as well as the healthcare professionals who support them. So, our users are a crucial part of the production team and we run everything past them before publication.

We have three distinct user groups who test and give feedback on existing and new information:

  • Volunteers between 13-24 with no personal experience of cancer
  • Young people between 13-24 who have had cancer
  • Healthcare professionals who work with young people with cancer (Advanced Nurse Practitioners, Clinical Nurse Specialists, Lead Nurses, Youth Support Coordinators)

All information produced by Teenage Cancer Trust is reviewed by all three of these groups to ensure it is age-appropriate, accessible and in an appropriate format. 

If you’re interested in being part of the information review process then send an email to [email protected] with the subject line ‘Join the review panel’ and we’ll get back to you.

We also work very closely with other members of funded staff on each information project to ensure we have a really good insight into what is needed.